June 30, 2014

  • I want you to meet: From Southern Lancaster County, PA

    A cousin of mine.

    I feel like the less i say the better as to not take away from her story just as it is.

    She is beautiful and courageous.

    Here she is - The article she wrote for me and a quote to start off with.

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    “It always amazes me to think that every house on every street is full of so many stories; so many

    triumphs and tragedies, and all we see are yards and driveways.” –Glenn Close

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    I like stories with tension to resolve, truth to uncover, and explanations for the unexplainable. I love

    real-life stories, also, where things are unpredictable... but it took a while for me to become comfortable

    with my own story.

    This particular part of my story started in August 2003 when I went to a Lancaster City hospital for

    vaccinations. I had just graduated from high school that spring and the whole world lay before me to be

    explored, experienced, and embraced. On this hot, humid day I was getting 5 vaccinations in preparation

    for a long-dreamed-of-missions trip to India.

    About 12 hours after receiving these 5 vaccination’s my body began to react violently. I started to shake

    and felt incredibly cold. I was chilled to the bone despite the oppressive heat of August. As the minutes

    and hours passed I experienced symptoms I had never felt in my life – the feeling of being sunburnt from

    head to toe and a migraine – along with flu-like symptoms of fever and nausea. The next day and a half

    is still only a blur in my memory. When I finally pulled through the worst I crawled – not walked – out of

    my bedroom.

    My body seemed to really bounce back after the odd reaction. At that time no doctor or nurse looked

    deeper into what caused the reaction or wanted to take responsibility for my case. I was able to go on

    that mission’s trip to India and both the reaction to the vaccines, and that day in August, were pushed

    into the back ground as I bounded forward in life.

    But odd symptoms kept cropping up over the next year. Many caring people filled with get-well-tips

    and answers told me to try this, take that, and go there. We began to run test after test but each one

    returned negative. One doctor finally pulled my mom aside and asked her if we have a history of mental

    illness in our family; he was strongly suggesting that my pain was merely in my head.

    By the 2 year mark I was not only officially sick but my immune system was also crashing. I was being

    diagnosed with Rheumatoid Arthritis, Adrenal Fatigue, Lyme Disease, and a myriad of other diagnosis.

    I have always been a dreamer. I have dreamed a thousand dreams that died a thousand deaths. Now I

    was being forced to learn to live with pain and the limitations my compromised health presented. For

    the first five years, or more, I kept giving things up as my condition seemed to slowly worsen. Every

    low point seemed to get a little lower. I stopped drawing. I finally even asked my brothers to pack up

    the remains of my art studio. My life-long dream of living in India was put on the shelf. And when I

    tried learning to play the Ukulele I soon hung that up when the more complicated chords proved to be

    impossible to play with swollen, arthritic joints.

    I learned so much about God, and about myself, in the past 10 years that I finally was able to embrace

    my pain as a gift. I learned that my self-worth doesn’t come from what I can do but from who I am in

    Jesus. I learned how to live life slowly enjoying moments instead of always looking forward to the next

    big event. I learned to let go... most of the time. I learned that that as nice as it is to have things “nice”

    my perfectionistic tendencies could be the death of me. Though I don’t always feel confident in my

    ability to face whatever my future holds I am always confident that I can cling tightly to the hands of

    The One who holds my future. I learned to laugh loudly and to laugh often. And it really is true what the

    great philosophers have said that the more deeply you allow yourself to experience your pain the more

    deeply you will be able to experience joy.

    I’d be lying if I led you to believe this journey has made a saint out of me. You can ask the people who

    live with me and they will assure you I am still quite human. Many days I just made it through by the

    grace of God. I could only laugh because I had already cried till my eyes were dry. I could only smile

    because I had chosen to find joy in something outside of myself. I could only keep on going because I

    knew that this here-and-now-life was merely a prelude to my Real Life in Heaven. And some days I only

    hung on because people were praying for me.

    This has been the longest journey ever in which I have changed so much I barely recognize myself. Pain

    has a way of making a person rethink everything they previously thought they knew. These days my

    lows are not so dramatic and low, and my highs keep getting better. I do still live with daily pain and

    take pain medication. And though it took many, many years till I finally found a doctor who recognized

    what actually happened the day I reacted to those vaccinations – and began to take steps toward

    dealing with heavy metal toxicity that caused the reaction in the first place – I am still on a bumpy,

    painful journey of healing. The many previous diagnosis that were given to me are slowly disappearing.

    Every year holds fresh hope and more healing. Except for a few swollen joints in my hands, and an

    occasional limp in my walk, I can appear “normal” to the public eye. But my life isn’t quite normal and

    pain is still my daily companion.

    Right now I am waiting to hear back from the Paracelsus Klinik Lustmuhle in St. Gallin, Switzerland. I

    am not sure exactly what the correspondence will include but they have received my complete medical

    history, my current diagnosis, and my state-side doctor’s suggested treatment. I believe the e-mail will

    confirm if they can help me, how long I would need to stay in Switzerland, and what their treatment

    plan would cost. I have done my research and my doctor has been observing this Klinik for years. This

    particular Klinik opened over 50 years ago, and while some of the procedures they specialize in are

    now available in the States everything State-side is still dubbed research. I feel confident that this Klinik

    would offer me what I need to take my health to a whole new level. I also hope to be able to reduce – or

    even eliminate – my pain and have medical assistance to come off the narcotics I am currently taking to

    manage it. I don’t have a clue where all the $$ will come from to pay for this trip but that is where I have

    to move forward praying, believing, and trusting.

    In all my wild dreaming I never dreamt of traveling to Switzerland. I am still learning that God is full

    of surprises, and delights in delighting His children. And so, as I wait to hear from the small country of

    Switzerland I have been immersing myself in all things Swiss. I went from knowing nothing to actually

    feeling like I am getting a feel for Switzerland. I really was/am ignorant about this beautiful little country

    that is light-years head of the US in the medical field. It is absolutely fascinating! This little land-locked

    country of 8,136,700 people has four official languages, a rich cultural history, and a library containing

    books dating back to the 9th century. There is so much more to Switzerland than its cheese and The Alps.

    Besides currently researching Switzerland I love all things related to words and writing. Writing has

    become not only an outlet but also a way of processing My Story. I love spending time with my five

    favorite little girls: 4 nieces and 1 god-daughter. And my 4 nephews hold a very special place in my heart

    also. My sisters are best friends and biggest cheerleaders, and I hang out at their houses whenever I

    get a chance. Relationships are important to me and I try to spend as much time as I can with my family

    and friends when I am not in therapy or going to another doctor appointment. Music and laughter and

    counting-my-blessings has also been my go-to when pain tries to strangle the joy out of living.

    And so, here’s to encouraging you as you live out your story: let’s stop living life mechanically and

    choose to take the time to embrace the moments. Life is not about that next stage or the next chapter;

    life is NOW. Like every good story ours will also be filled with pain and joy, triumph and tragedy,

    confusion and clarity. But in embracing our stories, and handing the pen back to God, we can find

    meaning in it all and new purpose in what seems to be complete purposelessness.

    -Marita

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    Diane is talking again :) so as not to confuse you.

    Marita and i are not close in age. Not that it matters in real life but i say that to say that until i read this article it was a little fuzzy to me about how this part of her story started.  I remember the day (years ago) that i was introduced to her art studio. I was shocked. I had no idea the kind of talent she had. I don't remember a single picture i looked at but i remember the feeling of wonder. Just the feeling from walking in and looking around. She HAS serious talent. I only saw it once. I'm dissapointed that she can't use that talent anymore. Or that it is no longer hers. But she found a way to move past it. And develop other talents. Just as beautiful and just as strong. I WANT to be that. No one would ever ask for the kind of journey Marita is on. She is owning her life the whole way and i read her story over and over and over... Marita, I loved taking your photos. I love your creativity that you brought to the shoot. Past and Present is represented with no bitterness or pride. Only LOVE and a big big heart. Your story makes me smile and hurt at the same time and that is what life is made of.

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    Her baby goddaughter.

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    Her nieces.

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    I hope her story has inspired you, too. Happy Monday. -Diane

Comments (9)

  • What a beautiful story - Praise despite the Pain! God has big plans for you, Marita. Thank you for sharing the depths of your heart. I see God written all over you because He has helped you bear this burden. God's blessings to you. I love your creative photography, Di!

  • Thank you for this amazing, painfully beautiful story and lovely photos!!
    Life and God. They have a way of changing hearts and plans and visions!
    I am learning how to embrace this life of 'different then expected' as well!
    God bless you for sharing!!

  • Wanted you to know,I also am dealing with Rheumatoid Arthritis. I have found a dietary supplement that has help me.I am off of pain meds. and just take this supplement.If you are at all interested email me and I'll get you the info.Hope you can find what will help you.

  • What a touching story. I was so moved by the beautiful soul within someone so racked with pain and disappointments.

  • Blessed by the inspiring story. I'm in awe....God Bless you.

  • Diane asked me about sharing my story on her blog. I had to process the fact of how vulnerable it made me feel - and how many, many people might possible read it - but I felt like it was the right thing to do because God was going to receive a lot of glory from My Story. And why not make something good come from all the pain I have experienced?

    I have had over a week or so to think about this, and process what parts to share and how to share My Story.

    But yesterday when I first saw that the My Story had actually been posted for the entire virtual world to see I was shocked at my reaction. I couldn’t even really read what I wrote, I felt detached, and before getting through the whole blog post I turned off my computer and left the room.

    I was reminded again that accepting, and processing, one’s story is never a once and done deal. It is part of living in a sin-cursed world. Every day is another day to accept and process and embrace. New days bring fresh pain, tears mixed with laughter, and the reality that we will never truly be alive till we reach Heaven.

    And that’s okay; that’s what we call life.

  • Marita - you are such a beautiful soul and you have a gift with words. Thank-you for sharing.

  • Wow...Marita, i was so blessed by reading your story. Nobody told me what you went through, i just heard that you have limes and that's all. Know that i've been very touched by your story and the way you live life. Praying that everything will go smoothly in Switzerland...be blessed! ~Vasi

  • I was on this same trip to India with Marita. I had no idea what she has been through! Thank you for sharing her story... Marita, praying for you in your journey of trusting God as the author of Your Story.

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